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Cystic Fibrosis
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Cystic Fibrosis is an issue to which I care deeply. At the age of 17 months I was diagnosed with this disease that effects literally millions of people. As for my current state of health, I have just had the blessing of getting a double lung transplant as of May 2002. I am very outspoken about my disease, so do not feel intimidated to ask a question. There will be a day when we look back on Cystic Fibrosis as a minor inconvenience. Until then knowledge is the best cure we have. Please take some time to look through some links I have created to help inform you about this disease.


What I like about Cystic Fibrosis!!!
I'll bet you didn't think I would say that, huh. It's true, Having Cystic Fibrosis has caused me to become a dreamer. Not having as much energy to go out and conquer suburbia, like most of us do in a day, has allowed me to focus on the smaller sometimes more important things of life. For instance ever taken the time to look at the effects that a light breeze has on the top branch of a tree? Or just watch leaves fall to the ground. Or gaze at eagles soaring high in the sky like little dots until they are out of sight. Sounds crazy right, but it's fun. Don't let the commotion of everyday life distract you from seeing the bigger, better picture. That is, God is in control, and as long as you know that you will be fine.

To read a beautiful piece of writing by Anna Quindlen about living life to the fullest Click Here.



What is Cystic Fibrosis

Cystic fibrosis is a hereditary disorder of the lungs and digestive system. 1 in every 3,300 live births have Cystic Fibrosis, and 1 in 20 people are silent carriers of the gene. The disease typically appears in early childhood and is more common among whites than other racial groups. Because of deficiencies in the Sodium Chloride Ion transfer in cells it interferes with the proper functioning of the exocrine glands. Typical manifestations include difficulty in breathing (due to heavy mucus production), excessive salt loss during sweating, and incomplete digestion and absorption of food.

There is no cure for Cystic Fibrosis at this time. However, Transplantation of the lungs are becoming more widely used as treatment for Cystic Fibrosis due to an ever increasing life span. Average life expectancy for someone with CF is currently about 32 years of age, and quality of life are increasing steadily due early detection (testing of newborns is now mandatory in some states) and aggressive use of anti-biotics, nutritional supplements, and exercise.

If you are not familiar with this disease, or you just want to know more click on any of these links for more information. I have tried to give the best links I have found, however, there are many I have probably missed. I will try to update periodically to help in your search. If you have any questions about CF, drop me an e-mail. All questions are good questions and I enjoy informing people about this disease. Also, if you have any information that you think I would like to see, drop me a line (E-mail or Snail-mail), and I would be glad to look at it.


View my webcam here!

May 29, 2002 I had my Double Lung Transplant!! Read my story here.




Some Helpful Resource Links for CF:

Cystic Fibrosis Handbook

Cystic Fibrosis Foundation


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